We have developed an educational program that aims to build compassion and create inclusive spaces for students to appreciate their visible differences in and outside of the classroom. Love the Skin You Are In is an enriching experience for all students, and we would like to partner with your school to implement this program.
A Children’s House for the Soul is excited to announce the premiere of a new short film featuring many of our non-profit’s families entitled “I Was Made A Masterpiece.” Created by Rick Guidotti of Positive Exposure alongside production team Vacant Light, the short film is intended to educate current and future medical professionals, educators, students and ultimately the greater community on the deep emotional impact of skin disease.
When your child is diagnosed with Scleroderma, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Scleroderma.
I was diagnosed with vitiligo at the age of seven, and I am now thirty years old. Most of my life I have had vitiligo, which is a skin condition that causes a loss of pigment from areas of the skin, leaving white patches all over the skin.
Fear, heartache, worry, isolation, sadness: all of these feelings and questions about the future come with a new diagnosis or treatment. Our instinct is to just smile and tell our kids it will be ok—that they will be fine.
When your child is diagnosed with Ichthyosis, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Ichthyosis.
Does your child have issues resisting the urge to pick at their own skin? If so making a tape doll may help! First, take a doll or toy and cover it in layers of invisible tape — this can be scotch or packing tape. Then, encourage your child to pick at the doll’s tape “skin” instead of at their own. You can layer the tape depending on your child’s age and capability to add or decrease difficulty. ⠀
It can sometimes be hard to discern between incentivizing your child for meeting expectations and bribing them into those behaviors, but Lindsay, our Director of Community Engagement, explains how parents and caretakers can find their footing.⠀