We are so thankful to Joyce and Leah for both sharing their story about Leah's eczema.
It was no surprise when Leah's dry, flaky and red patches of skin were diagnosed as eczema. I had several of the same patches on my face and arms when I was a kid. Both of my boys had been diagnosed with eczema when they were babies. They were both prescribed a mild steroid cream and their skin had cleared up within a year or so.
My mom had eczema and my brothers were born with eczema too. They were lucky and grew out of it. I didn't grow out of mine. My mom took me to a doctor when I was still a baby.
I already knew what the pediatrician was going to say. We should switch to fragrance free soap, lotion and laundry detergent, apply a steroid cream as needed and just wait for her to outgrow it. We did all those things with little success. She didn't outgrow it and it became something so much worse than the eczema that we had dealt with in the past. This was ECZEMA!!! It was angry and loud. It would not be ignored. It covered her tiny body. It would crack and bleed. She wasn't sleeping at night. She was miserable.
When I was about 2 years old, my family knew that my eczema was staying. The doctor would give my mom suggestions for lotions and creams. They cost a lot of money and we all know that we should have been spending that money to add to my Barbie collection instead. The lotions worked for about a week. I'd lather layers of lotion on my body and it would help for a little while and then it wouldn't. Of course, my mother didn't hold back on telling this doctor that nothing was working, and he suggested that we see a dermatologist.
I received a referral from our pediatrician for a dermatologist. We struggled through a few months while we waited for the first available appointment.
Then, I had a new doctor. My old doctor was a pediatrician (a doctor for kids), but this new doctor was a dermatologist. I started seeing him when I was about 3 years old. He worked with skin, but he mostly had adult patients, so I wasn't sure he would be able to help me at all.
Our first appointment at the dermatologist felt rushed. He took a quick look at Leah and talked to us for a few minutes. He prescribed a few new creams and then we were on our way. We would visit him several times over the next 4 years with little success. He was still hoping that she would eventually outgrow it. I started to feel that there was nothing else that we could do for Leah' s skin. We were trying home remedies, making our own creams, doing wet wraps and bleach baths. As a mother, I felt hopeless. During this time, I was working as a school nurse. I attended a health service staff development day with speakers on different topics pertaining to school nursing. One of our speakers was a pediatric dermatologist. I immediately wondered why had no one ever recommended a pediatric dermatologist to us for Leah? She spoke about several childhood skin conditions, including eczema. I was taking notes of things to try for Leah and I knew that I needed to make an appointment to visit her office. I was so excited for Leah to visit a pediatric dermatologist!!
I had my first appointment with Dr. Bree when I was 7 years old. My new dermatologist who worked just with kids was very nice, and her office was very cozy. She talked to me and we discussed the problems that I was having with my skin. She explained why my skin wouldn't hold moisture and what I needed to do to fix it. She also told me about Camp Dermadillo and said that I would able to go that summer because I was about to turn 8 years old. She went through all my lotions and creams and gave me new ones to try.
Our experience with a pediatric dermatologist was wonderful. She sat and talked with us for a long time. She asked questions to learn about Leah and her interests. She explained eczema to Leah. She looked through all the creams that we had been using and told us what to continue and what to discard. She even invited Leah to camp for that summer. It was a great visit and we left hopeful and excited. At that moment, we became a part of the Children's House family. A few months later, Leah attended Camp Dermadillo for kids with chronic skin conditions. She was gone for a week and loved every minute of it! Leah met new friends and was taken care of by the amazing staff of counselors, nurses and doctors.
Camp Dermadillo was amazing! I really loved going to camp and meeting new people who had similar skin conditions. Everyone at a Children's House makes you feel like family and not just a customer. A Children's House for the Soul has fun events that you can go to with your family. You get a lot of changes to be yourself and make new friends.
Being part of a Children's House for the Soul has changed our lives. We are part of an amazing family that is constantly supporting and encouraging us on our journey with eczema.
I'm now 10 years old and I feel better about my eczema. My skin is getting better, but it's not perfect. It's getting better each year and if I have any problems, I know that A Children's House will be there to help me!
A Children’s House For The Soul was honored to participate in the 2022 Chevron Houston Marathon! It was our first year as a run for a reason charity and we were so blessed with such a special opportunity! We had a team of over 10 half and full marathon runners, and 8 5K runners representing …
Getting your child to comply with wet wraps can feel like can be a battle! Which if you think about it, is a little ironic, because by administering wet wraps you are helping your child’s suit of armor, their skin defends itself against the outside world! So let us talk strategy, determine some “weapons” for your arsenal, and let’s realign so that you and your child can go from enemies to allies.
When we feel overwhelmed or stressed, it can be tempting to tell ourselves (or each other!) Just relax, calm down! When we are stressed or freaking out, that is easier said than done. That’s why preparing a “coping tool kit,” a set of strategies for dealing with stress can be really powerful.
Do you freak out when you break out? I know I have! It is natural when we have a break-out to look in the mirror and think things like “These pimples are gross!” “I hate my skin!” “Things are never going to get any better!” Even though it is natural we think this way, it is harmful too.
Stop picking, popping, poking your pimples!
I know, it’s sort of like eating the whole bag of potato chips…we all know we aren’t supposed to do it, and yet, the temptation is SO STRONG! So…how do you stop?
Start with choosing an alternative activity!
We had so much fun at our first annual Heart + Sole Walk and Back To School Family festival! We want to thank all of our sponsors and everyone who came out to support our mission to make the world a more kind and understanding place for those with skin conditions.
As a Child Life Specialist working with teens and kids who have special skin, there is one question I get A LOT. “How do I talk to my teenager, when they tell me they don’t like how they look?” Parents are so worried that they will say the “wrong thing.” And truthfully, I have spent …
We had an amazing time celebrating the launch of our brand new SKIN DISCOVERY BOXES, a very special collaboration with our friends at CeraVe! CeraVe’s tireless pursuit of therapeutic skincare for all is truly more than skin deep and we couldn’t be more thankful. We celebrated in style thanks to our friends at Star Cinema …
A Children’s House for the Soul believes that it takes a village to support a child and family impacted by skin disease and birthmarks and that we are all better together.
Open House and Ribbon Cutting/Bring A Children’s House Home: On June 5th we began a very exciting new chapter of our A Children’s House story in the form of opening up our new beautiful space to serve children and teenagers with skin conditions and birthmarks and their families. This space includes a salon, a library & craft space, a teen room, and more! We also debuted our incredible new custom mural from up and coming local artist Eli Pallaert.
Our Family Trivia night was oh so much fun, and a huge success! We had so much fun getting to reconnect with all our friends and enjoy some laughs while snacking out on pizza and snowcones!
In honor of Vascular Birthmark Awareness Month, our childlife specialist Lindsay O’Sullivan had a great conversation with Jose about growing up with his special masterpiece skin!
In this interview, Ally shares about her experiences growing up with Ichthyosis. Ally shares how: Meeting other kids with special skin can help kids to feel less isolated and give them a very special sense of comradery and understanding. Parents don’t have to do everything perfectly to be the perfect parent for their child and …
What a wonderful time to relax, enjoy friendly company, and share their hearts on being a mama to a kiddo or teen with special skin. It was truly so special! These mamas were made a masterpiece!
Vascular birthmarks are very common in children. These birthmarks are made of blood vessels in the skin and can occur anywhere on the body. They may be pink or red in color, blue or purplish, flat or raised. Since they are vascular, sometimes they will feel warm to touch and may change in color with …
We have some exciting updates about our Capital Campaign! Learn about our short and long term plans for our own space.
You Can’t Teach What Has No History “This is how much God loved the world: He gave his Son, his one and only Son. And this is why: so that no one need be destroyed; by believing in him, anyone can have a whole and lasting life. God didn’t go to all the trouble of …
In honor of Ectodermal Dysplasia Awareness month in February, we sat down with two of our dearest friends Zach and his mama Susan! Zach is an avid golfer, an Aggie, and is affected by Ectodermal Dysplasia. Susan and Zach teach us about ED and the importance of finding community. They also had helpful tips and …
Join us for a fun and inspiring interview with this incredible lady Ana Maria! Ana Maria Triana is 15 years old and the author of How to Conquer Alopecia Universalis. Ana Maria gives heartfelt advice, shares wisdom beyond her years, and will leave you feeling full of compassion and confidence. A Children’s House for the …
In honor of the upcoming National Epidermolysis Bullosa (EB) Awareness week, we wanted to share this great piece from our friend, Rachael Wrobel about how her mama mothered her well, even despite the challenges of EB.