Kurtis

Kurtis

Kurtis is 14 years old. He loves music and video games, but he dreams of becoming a professional basketball player. Kurtis stands out on the court for two reasons; first, he is really good at basketball and second, he has vitiligo

Allie

"I would have given anything to know there were other kids like me. I was the only one and it was lonely."

Alejandra
Megan

Megan

Megan is bubbly, artistic, and learning to be a photographer. Megan is 16-years-old and just finished her freshman year of high school.  The year has provided some new challenges to a girl that looks different from most of the other kids.

Luke

When asked about the challenges his skin condition presents at school he said, “I’m in advanced class, and have been for years. The kids in my class understand, but the general population asks. They aren’t trying to mean, they just don’t know.”

Luke 2
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Jules

"Jules has a sweet disposition, is a great friend, and an excellent student." CANDLE syndrome stands for Chronic Atypical Neutrophilic Dermatosis with Lipodystrophy and Elevated temperatures, and there are only 60 known cases. This condition causes Julia to develop “bumps” all over body, but they mostly affect her face and bottoms of her feet.

Mia

“Most of her friends don’t even realize the number of doctor visits she has,” said her mom.  “Mia doesn’t talk a lot about it, but she knows she looks different.  It’s helpful for her to have others to talk to.”

Mia
Stephanie

Stephanie

Stephanie Bedford's praise for a beautiful life is not only contagious but motivating. Bringing light to those she loves and commitment to her profession, you'll quickly begin to sing a different tune to match her pitch. A child of God and a heart built by family.

Jose

Jose

Proud father of 3 and loves spending time with his family discovering new places, Favorite basketball team is the Spurs. Loves to BBQ, listen to country music and old trucks.

Leah

Leah

Children with BCCNS, advanced BCC, and SCC learn to overcome the challenges and obstacles, by excelling in the light of the moon and stars. Kristi knows this first-hand as she is the founder of the BCCNS Alliance.

Gigi

Gigi

Gigi is 12 years old. She’s adorable and has a nice smile. She loves doing slime and swimming. She has much FAITH IN GOD. She loves all nurses and doctors.

Kristi

Kristi

Children with BCCNS, advanced BCC, and SCC learn to overcome the challenges and obstacles, by excelling in the light of the moon and stars. Kristi knows this first-hand as she is the founder of the BCCNS Alliance.

Erica

Erica

Erica is a stunning 47-year-old. She loves kickboxing and has developed a passion for acting.

Zach

Zach

Zach is a Sports Management major at Texas A&M University. He enjoys baseball and golf, travel and hanging out with friends. He is affected by ectodermal dysplasia but he does not let this define what he can and can’t do!

Deshaun

Deshaun

DeShaun is a rising high school senior who was just promoted to marching band snare after 3 years as first bass drummer. He enjoys history and earned commended level for this year's History STAAR. His passion is exotic cars and basketball. He was diagnosed with alopecia areata (now universalis) at age 9.

Jalene

Jalene

Jalene is 9 years old and she is very sweet young lady. She always wants everyone to feel welcomed and happy. Jalene has excelled in her soccer skills and is currently playing in the elite team for her age group. Jalene’s favorite subject in school is math and she is always adding numbers every chance she gets.

Diane

Diane

Diane was diagnosed with Vitiligo at the age of 9-years old. She is now 56-years old and in 2017 she started the Houston Vitiligo Awareness Movement. In her free time, she loves to read and write. She plans to release her first book “Coming From The Heart: Dedicated to the ONE I Love” soon.