Inaugural Love The Skin You Are In
June 4, 2016, was a rainy day in Houston, but it did not deter the nearly 75 participants from attending the first annual Love the Skin You Are In conference that was held at The Health Museum and sponsored by A Children’s House for the Soul. There was a palpable energy and sense of community among those who attended this event that aimed to educate, encourage and empower.
The day began with a keynote address from Rick Guidotti, who is the founder of Positive Exposure, a nonprofit organization that provides opportunities to see individuals living with a difference first and foremost as a human being rather than as a specific diagnosis or disease. His inspiring message of changing how you see and seeing how you change was a powerful one. Rick, as a previous fashion photographer in New York City, shared his incredible skills and captured the true beauty of those who attended through his brilliant photographic works of art.
Jessica Shannon, a chaplain with a particular love for ministry with children and their families, was able to use a potato to help us see the unique potential that we all have within ourselves. Shannon Pickard, the #1 most requested youth speaker in America, shared his dynamic spirit and entertaining sense of humor, to help us realize that we all super heroes. Lindsay O’Sullivan, a certified Child Life Specialist and Camp Dermadillo Programming Coordinator, also led us in some fun activities using Positive Works flipbooks that showed us that we shouldn’t put ourselves in boxes and that we all rock!
A highlight of the day was the panel of experts that included teens and young adults affected by skin conditions and birthmarks who shared their insider tips with the group. The day ended with a reminder that we are all the World’s Greatest! It was an amazingly awesome event that connected us, inspired us and brought joy to the soul thanks to everyone who was involved- our participants, our speakers, our panelists, our volunteers, our planning committee, our board of directors and our donors!
Based on the comments from the event, we can’t wait for the next one!
“It was great hearing about others and getting questions I didn’t even realized I had answered.”
“All of the speakers were awesome. Very positive and uplifting.”
“So glad you incorporated the spiritual aspects of coping. These children so need to hear that God does not make mistakes and they are His masterpieces!”
“The panel of insiders was fantastic! Hearing from people who have walked the path we are going down gives me hope as a parent that my child won’t be defined by her limitations.”
“It was very interesting and informative- time flew!”
“Meeting new people and learning how they cope and deal with things was great.”
We are so thankful to all of our sponsors who played a part in making our Love the Skin You Are In conference happen!
In honor of the upcoming National Epidermolysis Bullosa (EB) Awareness week, we wanted to share this great piece from our friend, Rachael Wrobel about how her mama mothered her well, even despite the challenges of EB.
I am fortunate enough to be Mama to three little girls. Shortly after my eldest daughter’s first birthday (about 4 years ago) I noticed her hair was thinning. I was told by many it was just typical baby hair loss until it just couldn’t be described at “typical” any longer.
After the last several months of this pandemic, I think we are all well-versed in how important it is to wash our hands so that we don’t spread germs. But with all this hand washing and sanitizing, dry skin, eczema breakouts, and contact dermatitis have become even more troublesome. What can we do about it?
Join us for a quick and very insightful video interview with Dr. Alana Kennedy-Nasser as she shares with us how to keep kids safe as they go back to school in-person and how to keep kids developmentally “on track” as they attend school virtually.
What questions do you have for back to school content experts? Read on for some brilliant questions and answers from this super smart teacher mama, Lacy Cunningham, M.A.Ed.
Online learning can be a fun experience filled with lots of great experiences; but as humans, we were meant to interact with one another and have companionship. How can we develop ways to ensure kids stay engaged while learning in a different setting?
This year, the normal first day of school jitters will likely be accompanied by some new concerns that we have not encountered before. Lindsey O’Sullivan, Child Life Specialist, provides guidance on how to navigate these conversations with your child.
As we prepare for school to begin, those of us that are sending our kiddos slowly back out into the world may find ourselves explaining what has changed (again) in the last few months. Dr. Chad Brandt, a therapist who specializes in anxiety in children and teens, offers us a few guideposts for talking about the coronavirus with children.
Validation means to acknowledge and sometimes normalize someone’s feelings or reactions to a specific scenario. Validation continues the conversation, creates trust, and helps children communicate their truest feelings with the adults around them.
We should not shelter our children from our disappointment. While it is natural to have this desire, it is not a good idea to want to keep them from knowing that we, as adults, sometimes have “bad” (i.e. not the most fun) feelings.
In February we launched a reboot of our #Iwasmadeamasterpiece social media campaign from this summer with a fun valentines themed twist.
As part of our birthday surprise, A Children’s House for the Soul announced the launch of our public capital campaign to buy 1972 W. Dallas and renovate the space into the first ever community building dedicated to the social, emotional and spiritual support of children with chronic skin conditions/birthmarks and their families.
The 2020 Camp Dermadillo Reunion was a great success! We had more than 60 friends new and “old” come to Speedy’s Fast Track for a great day of go-kart racing, mini golf, laser tag, arcade games and more.
Love the Skin You’re In Family Day 2019 is officially in the books! We had a great time and learned a lot and I am so grateful for the wonderful day!
As the month of November is upon us, I know we are all going to begin reflecting on what we are thankful for, and secretly looking towards the new year thinking of things we hope to come. I just wanted to write you a letter to thank you, Skin, for all the ways you’ve been there for me and shaped me as a person. I never really stopped to think about it before, but in a way, you have made all the difference.
We are so thankful to Joyce and Leah for both sharing their story about Leah’s eczema.
While eczema can seem common, it takes on a lot of different forms. Also, many people don’t understand how much pain and discomfort can come from eczema. Here are a few ways to explain eczema to different ages.
Hello, my name is Megan and I have alopecia. It is alopecia awareness month and I would like to share my story. The basic description of alopecia is that hair falls out in patches, or total loss of hair on the scalp or the body. Alopecia is different for everyone, and for me, I went through different stages.
Alopecia areata is a common autoimmune disorder that often results in unpredictable hair loss. It affects roughly 6.8 million people in the United States.In the majority of cases, hair falls out in small patches around the size of a quarter. For most people, the hair loss is nothing more than a few patches, though in some cases it can be more extreme.
In honor of National Alopecia Awareness Month, one of our Mom’s is sharing her and her daughter’s path over the last 10 years since diagnosis. Thank you Stacy for sharing your family and your faith with us!