How to explain Ichthyosis to children at different ages
May is Ichthyosis Awareness Month.
“Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. Each year, more than 16,000 babies are born with some form of ichthyosis. A recent study has determined that approximately 300 babies are born each year with a moderate to severe form of ichthyosis. Ichthyosis affects people of all ages, races and gender. The disease usually presents at birth, or within the first year, and continues to affect the patient throughout their lifetime.” (Source: First Skin Foundation)
When your child is diagnosed with Ichthyosis, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Ichthyosis.