Ectodermal Dysplasia Awareness


In honor of Ectodermal Dysplasia Awareness month in February, we sat down with two of our dearest friends Zach and his mama Susan! Zach is an avid golfer, an Aggie, and is affected by Ectodermal Dysplasia. Susan and Zach teach us about ED and the importance of finding community. They also had helpful tips and tricks for playing sports in the Texas heat, when sweating isn’t your strong suit! Check out this incredible interview with Zach and Susan. (They give some love and shoutouts to our friends at the NFED as well.

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Written by: Lindsay O'Sullivan

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