Fashion Show and Tell

Celebrating our Skin as a Work of Art

A masterpiece. An original work of art. Beautiful. Perfect yet authentic. Made with care precision love and a little bit of grit. Measured. Not mistaken. Exactly and perfectly right. Not without flaws and yet flawless.

The Vision

The impacts of skin disease go far beyond the surface. While the hardships and trials bring challenges, they can also bring opportunity and growth. We wanted a way to bring that message to life at the New York premiere of our Masterpiece film, so we approached designer Kimberly Oehrlein about a collaboration where fashion could be used to empower, enlighten, and educate.

We started by taking pathologic images of three girls' skin diseases and then using the microscopic images to create the pattern for custom printed fabric. After meeting with each girl and her mom, Kimberly designed a unique gown from the custom fabric that was inspired by each girl’s personality and approach to life.

The Fabric

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Mia has scleroderma, a chronic connective tissue disease which causes hardening of the skin.

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Emily has atopic dermatitis, also known as eczema. Skin gets red, itchy, and scaly.

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Alex has alopecia areata, a condition which causes round patches of hair loss.

ACHFTS was created specifically to focus on the emotional gap in the care of children with skin conditions and birthmarks. By using the custom fabric, our hope is to empower these girls to literally wear their disease. But instead of the disease defining them, they get to define it on their own terms and wear it with confidence and pride. The skin really is an exquisite canvas and this is such a stunning way to highlight the many layers of beauty that these girls, and all those affected by skin disease, share with the watchful eye of others in this world.

The Girls and Their Stories

Join our community

Do you or someone in your family have a skin disease or serious birthmark? Join us at an event or learn more about our organization.

Make a donation

Please consider a one-time or monthly donation to help support future projects that will help even more children and teens love the skin they are in.

A Special Thanks

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We are so grateful to Sagis Diagnostics for their tremendous support and financial contributions towards out Masterpiece film and the creation of these gorgeous dresses.

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Kendra Scott generously donated all of the jewelry for the girls to wear with their dresses.

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Thank you to Rick Guidotti and Positive Exposure 109 for generously sharing their gallery space with us during their opening weekend.