Celebrating our Skin as a Work of Art
A masterpiece. An original work of art. Beautiful. Perfect yet authentic. Made with care precision love and a little bit of grit. Measured. Not mistaken. Exactly and perfectly right. Not without flaws and yet flawless.
The impacts of skin disease go far beyond the surface. While the hardships and trials bring challenges, they can also bring opportunity and growth. We wanted a way to bring that message to life at the New York premiere of our Masterpiece film, so we approached designer Kimberly Oehrlein about a collaboration where fashion could be used to empower, enlighten, and educate.
We started by taking pathologic images of three girls' skin diseases and then using the microscopic images to create the pattern for custom printed fabric. After meeting with each girl and her mom, Kimberly designed a unique gown from the custom fabric that was inspired by each girl’s personality and approach to life.
Mia has scleroderma, a chronic connective tissue disease which causes hardening of the skin.
Emily has atopic dermatitis, also known as eczema. Skin gets red, itchy, and scaly.
Alex has alopecia areata, a condition which causes round patches of hair loss.
ACHFTS was created specifically to focus on the emotional gap in the care of children with skin conditions and birthmarks. By using the custom fabric, our hope is to empower these girls to literally wear their disease. But instead of the disease defining them, they get to define it on their own terms and wear it with confidence and pride. The skin really is an exquisite canvas and this is such a stunning way to highlight the many layers of beauty that these girls, and all those affected by skin disease, share with the watchful eye of others in this world.
The Girls and Their Stories
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Do you or someone in your family have a skin disease or serious birthmark? Join us at an event or learn more about our organization.
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