Ichthyosis

Blogs and REsources

Ichthyosis is a family of genetic skin disorders characterized by dry, thickened, scaly skin. The more than 20 types of ichthyosis range in severity of symptoms, outward appearance, underlying genetic cause and mode of inheritance (e.g., dominant, recessive, autosomal or X-linked).

Ichthyosis Awareness month with Ally

In this interview, Ally shares about her experiences growing up with Ichthyosis. Ally shares how: Meeting other kids with special skin can help kids to feel less isolated and give them a very special sense of comradery and understanding. Parents don’t have to do everything perfectly to be the perfect parent for their child and …

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3 ways I respond when people stare at my skin

To be honest, I have spent most of my life ignoring the comments and stares, but I have found that it is better to speak up. Speaking up helps that person learn something new and hopefully the next time he or she sees someone with something different about them, they will react a bit better.

Meet Allie

“I would have given anything to know there were other kids like me. I was the only one and it was lonely.” Allie has epidermolytic ichthyosis and share how ACHFTS has helped her manage it.

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Do you or someone in your family have a skin disease or birthmark? Join us at an event, engage with us online, or learn about the many others ways to get involved in ACHFTS.

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