Resources

Blogs and REsources

How to explain Ichthyosis to children at different ages

When your child is diagnosed with Ichthyosis, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Ichthyosis.

Resources we Trust

When you’ve just learned your child has a skin disease, it can be so tempting to turn to google and start reading worst case scenarios. We always recommend doing your research, but here’s a list of resources we trust to give you quality information!⁣

Why should your family engage with other families managing skin disease?

Many of us are able to take our skin for granted. We may forget that it is our largest organ, our first defense against everything, and visible to everyone around us. However, if you or your child is battling skin disease, you know how life altering our skin is for not only physical, but also mental well-being. To give some perspective, in a study of chronic diseases affecting children, skin disease ranks second to cerebral palsy in regards to impairment of quality of life.

How can you best manage anxiety in children with skin conditions?

“Thinking positively”, “ignoring it”, or a “just do it” attitude are often well-meaning but may cause kids to feel invalidated. Instead, try going through some of these steps in anxious moments.

Don’t Fry Day! Tips for Safe Skin in the Sun

Today is Don’t Fry Day! Protect your skin today and every day. Millions of Americans will enjoy the great outdoors this weekend. Skin cancer, caused by too much sun, is the most common of all cancers in the United States. More people will be diagnosed with skin cancer this year than breast, prostate, lung, and …

Don’t Fry Day! Tips for Safe Skin in the Sun Read More »

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