Hello, my name is Megan and I have alopecia. It is alopecia awareness month and I would like to share my story. The basic description of alopecia is that hair falls out in patches, or total loss of hair on the scalp or the body. Alopecia is different for everyone, and for me, I went through different stages.
Lindsay, our community director and a Childlife Specialist, offers several different ways to explain this to children of different ages.
If you have a child with alopecia and you are trying to help them formulate an explanation for peers or siblings, we would love to help, using details about their specific diagnosis and experience. Please reach out to us at firstname.lastname@example.org