What has ACHFTS community done for your family?

At our recent Family Day, we asked a few of our parents what A Children’s House for the Soul has done for them and their families. Our parents and families are such a blessing and we are honored to work with them towards our mission of helping kids love the skin they’re in!

Incentives and bribes are not the same

It can sometimes be hard to discern between incentivizing your child for meeting expectations and bribing them into those behaviors, but Lindsay, our Director of Community Engagement, explains how parents and caretakers can find their footing.⠀

3 ways I respond when people stare at my skin

To be honest, I have spent most of my life ignoring the comments and stares, but I have found that it is better to speak up. Speaking up helps that person learn something new and hopefully the next time he or she sees someone with something different about them, they will react a bit better.

How to explain Ichthyosis to children at different ages

When your child is diagnosed with Ichthyosis, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Ichthyosis.

Resources we Trust

When you’ve just learned your child has a skin disease, it can be so tempting to turn to google and start reading worst case scenarios. We always recommend doing your research, but here’s a list of resources we trust to give you quality information!⁣

Recap of Family Day 2019

We couldn’t have asked for a more beautiful Spring day to visit Camp for All with our families!Camp for All is a unique, barrier-free camp working in partnership with other not-for-profit organizations to enrich the lives of children and adults with challenging illnesses or special needs.

Recap of Heart and Soul Valentine’s Ball 2019

A Children’s House for the Soul is thrilled to report a very successful first biennial Heart & Soul Valentine’s Ball on February 9th 2019. Approximately 120 guests enjoyed dinner by Five Loaves & Two Fish Catering, drinks, dancing with the Royal Dukes and a silent auction at the Health Museum in Houston.

Why should your family engage with other families managing skin disease?

Many of us are able to take our skin for granted. We may forget that it is our largest organ, our first defense against everything, and visible to everyone around us. However, if you or your child is battling skin disease, you know how life altering our skin is for not only physical, but also mental well-being. To give some perspective, in a study of chronic diseases affecting children, skin disease ranks second to cerebral palsy in regards to impairment of quality of life.