Blogs and REsources

I am not my hair. Alopecia Awareness Month

Hello, my name is Megan and I have alopecia. It is alopecia awareness month and I would like to share my story. The basic description of alopecia is that hair falls out in patches, or total loss of hair on the scalp or the body. Alopecia is different for everyone, and for me, I went through different stages.

How to explain Alopecia to children of different ages

Alopecia areata is a common autoimmune disorder that often results in unpredictable hair loss. It affects roughly 6.8 million people in the United States.In the majority of cases, hair falls out in small patches around the size of a quarter. For most people, the hair loss is nothing more than a few patches, though in some cases it can be more extreme.

Our journey with Alopecia Areata

In honor of National Alopecia Awareness Month, one of our Mom’s is sharing her and her daughter’s path over the last 10 years since diagnosis. Thank you Stacy for sharing your family and your faith with us!

Developing a School Coping Plan for your Child

As parents, one of the best things we can do is to work with educators, school counselors and nurses to help to develop a coping plan for how to manage school.

Our Journey with Psoriasis

When I heard psoriasis, I just had a general idea about a few itchy patches that really could be pretty irritating. But, in my mind, it was just a skin condition. I had no idea how a skin condition could become all-consuming – and how highly our culture valued outward appearance.

“Love the Skin You Are In” School Program

We have developed an educational program that aims to build compassion and create inclusive spaces for students to appreciate their visible differences in and outside of the classroom. Love the Skin You Are In is an enriching experience for all students, and we would like to partner with your school to implement this program.

Positive Exposure Film Premiere – Recap

A Children’s House for the Soul kicked off the Masterpiece Challenge at last weekend’s Positive Exposure Film Premier. Click here to see what you missed!

“I Was Made a Masterpiece” FRAME Film

A Children’s House for the Soul is excited to announce the premiere of a new short film featuring many of our non-profit’s families entitled “I Was Made A Masterpiece.” Created by Rick Guidotti of Positive Exposure alongside production team Vacant Light, the short film is intended to educate current and future medical professionals, educators, students and ultimately the greater community on the deep emotional impact of skin disease.

Scleroderma diagnosis by age

When your child is diagnosed with Scleroderma, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Scleroderma.

This is me: Vitiligo Awareness

I was diagnosed with vitiligo at the age of seven, and I am now thirty years old. Most of my life I have had vitiligo, which is a skin condition that causes a loss of pigment from areas of the skin, leaving white patches all over the skin.

Join our community

Do you or someone in your family have a skin disease or birthmark? Join us at an event, engage with us online, or learn about the many others ways to get involved in ACHFTS.

Make a donation

Please consider a one-time or monthly donation to help support future projects that will help even more children and teens love the skin they are in.