Our Journey with Psoriasis

When I heard psoriasis, I just had a general idea about a few itchy patches that really could be pretty irritating. But, in my mind, it was just a skin condition. I had no idea how a skin condition could become all-consuming – and how highly our culture valued outward appearance.

“Love the Skin You Are In” School Program

We have developed an educational program that aims to build compassion and create inclusive spaces for students to appreciate their visible differences in and outside of the classroom. Love the Skin You Are In is an enriching experience for all students, and we would like to partner with your school to implement this program.

“I Was Made a Masterpiece” FRAME Film

A Children’s House for the Soul is excited to announce the premiere of a new short film featuring many of our non-profit’s families entitled “I Was Made A Masterpiece.” Created by Rick Guidotti of Positive Exposure alongside production team Vacant Light, the short film is intended to educate current and future medical professionals, educators, students and ultimately the greater community on the deep emotional impact of skin disease.

Scleroderma diagnosis by age

When your child is diagnosed with Scleroderma, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Scleroderma.

This is me: Vitiligo Awareness

I was diagnosed with vitiligo at the age of seven, and I am now thirty years old. Most of my life I have had vitiligo, which is a skin condition that causes a loss of pigment from areas of the skin, leaving white patches all over the skin.

On the other side of the diagnosis

Fear, heartache, worry, isolation, sadness: all of these feelings and questions about the future come with a new diagnosis or treatment. Our instinct is to just smile and tell our kids it will be ok—that they will be fine.

Vitiligo diagnosis by age

When your child is diagnosed with Ichthyosis, you’ll likely need to explain the disease to not only your child as they grow up but also siblings, cousins, friends, and acquaintances. We’d like to break down some examples of age appropriate ways to explain Ichthyosis.

Have a skin picker?

Does your child have issues resisting the urge to pick at their own skin? If so making a tape doll may help! First, take a doll or toy and cover it in layers of invisible tape — this can be scotch or packing tape. Then, encourage your child to pick at the doll’s tape “skin” instead of at their own. You can layer the tape depending on your child’s age and capability to add or decrease difficulty. ⠀

What has ACHFTS community done for your family?

At our recent Family Day, we asked a few of our parents what A Children’s House for the Soul has done for them and their families. Our parents and families are such a blessing and we are honored to work with them towards our mission of helping kids love the skin they’re in!