An invite from our PHACE Syndrome Community friends

PHACE

Our friends in the PHACE Syndrome Community are looking forward to their upcoming conference and we are happy to share their invitation with you:
 
We are excited that the 2016 PHACE family conference will be held in downtown Indianapolis at the NCAA Hall of Champions Conference Center from June 23-25, 2016!
We’re looking forward to being in a wonderful facility in the center of lots of activities for the entire family. The 2016 conference will include:
• New topics for families with kids of all ages, including sessions focused on how to successfully navigate school-related issues.
• The latest PHACE research and treatment protocol.
• Keynote speaker will be a leading researcher from the National Institute of Health’s Office of Rare Disease Research (ORDR).
Conference sessions will take place on June 23rd and 24th. On June 25th we will have a Family Fun Day, which will include lunch and activities geared towards our kids.
You can find more information and sign up on their website at http://www.phacesyndromecommunity.org/#!conference/cswf

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